All YARR members are required to create a YARR profile. Our goal is to support YARRs in creating a professional online presence that each member can use to build their resume and …

YARR Policy Campaign A major goal of the Young Adult Rare Representatives (YARR) is to ensure that young adults have a growing impact on public policy in the rare space. This …

The YARR Program Manager provides support for the strategic priorities of the EveryLife Foundation for Rare Diseases’ patient engagement and YARR programming. This position …

Overview Speakers Bureau Leadership Academy Summer Series Meet the YARRs YA Rare Coalition Healthcare Guide Voter Resources

• Young Adult Representatives of RDLA (YARR) Meetup YARR Members will gather following the Legislative Conference to discuss the day’s events. YARR is a highly motivated group of …

Thinking through your recent symptoms, lifestyle, and needs will help you determine which options suit you best and which follow-up questions to ask. Download a copy of our Prepare …

Jan 26, 2018 · Rare Across America DC United States, Virtual In-district and virtual meetings with members of Congress Find out more »

Need a YARR speaker for your company’s Rare Giving supports individual rare disease patients and organizations that engage patients, caregivers, and others in the community in advocacy, …

EveryLife Foundation for Rare Diseases

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