Our programs bring patients with hemophilia B together from all over the USA, connecting them with their common bond and empowering them to gain support, lifetime friends, and the knowledge needed to make important life decisions.

6 days ago · If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions.

Treatment of hemophilia B can be complex. It was only a few years ago that therapies for hemophilia B were limited to just a couple of products. Today, there are multiple options and more coming, including longer-acting clotting factors, subcutaneous injections, and gene therapy.

Hemophilia B is a genetic disorder characterized by excessive bleeding due to a deficiency or absence of Factor IX, a clotting factor. While primarily associated with males, women can also carry or inherit the hemophilia B gene.

Discover comprehensive resources on Hemophilia B at our education hub. Access vital information, product information, community events and support for managing this rare bleeding disorder. Empower yourself with the latest insights to improve your quality of life.

Enhance your understanding of Hemophilia B with our detailed glossary of terms, covering everything from clotting factors to treatment options. Learn the key terminology associated with this bleeding disorder.

Discover how 'Meetings on the Road' unites the Hemophilia B community with free, member-focused events, childcare, and travel support.

About Hemophilia B Glossary Podcast Listening & Reading B-Hub. Donate Search. Folder: Membership. Back. Apply for Membership B-Hub. 2025 Annual Hybrid Symposium April 10-13, 2025 Orlando, FL. Can’t make it? Attend virtually! We’re excited to invite you to our Virtual Symposium Experience—a welcoming and inclusive way to connect, learn ...

As an adult you’ll be managing your hemophilia B treatment regimen and all your medical needs on your own—and the needs of others, if starting a family. As you mature bodily, emotionally, financially you’ll benefit from having a network of support and information that can help make coping with life adjustments easier.

Apr 25, 2024 · [email protected]. 880 Third Avenue, 5th Floor New York, NY 10022 212-520-8272. Terms and Conditions ©2025 The Coalition for Hemophilia B