Sep 20, 2012 · Lia, the subject of Anne Fadiman’s 1997 book “The Spirit Catches You and You Fall Down,” died Aug. 31 in Sacramento at the age of 30, after living decades longer than doctors said was...

Lia Lee (Romanized Popular Alphabet: Liab Lis, [4] July 19, 1982 – August 31, 2012. [5]): a Hmong child born in Merced, California, in 1982. Beginning in infancy, Lia experiences severe seizures due to Lennox–Gastaut syndrome, a rare form of epilepsy.

Feb 2, 2017 · But Lia Lee’s story is ultimately one of tragedy and love. After she suffered a seizure that left her in a vegetative state, her family took care of her for almost the entire 30 years of her life with an uncommon devotion.

Sep 15, 2012 · Lia Lee died in Sacramento on Aug. 31. (Her death was not widely reported outside California.) The immediate cause was pneumonia, Ms. Fadiman said.

Nov 2, 2017 · Lia Lee, the daughter of a Hmong refugee family in California’s central valley, was at the fulcrum of a cultural battle. It was a battle between medical science and indigenous tradition; between western and eastern worldviews; between a handful of American doctors and a struggling immigrant family, all of them doing their best to care for a ...

Aug 15, 2013 · Lia Lee was the profoundly disabled daughter of Hmong refugees living in California. She died in August. Lia Lee suffered from epilepsy and had a catastrophic seizure at age 4.

Sep 15, 2012 · At 4-foot-7 and 47 pounds, Lia Lee could speak only with her eyes and her cries. Stricken by seizures since she was a few months old, she battled through, singing Hmong folk songs and joyfully...

Sep 20, 2012 · When Lia was about three months old, her older sister Yer slammed the front door of the Lees’ apartment. A few moments later, Lia’s eyes rolled up, her arms jerked over her head and she fainted. The Lees had little doubt what had happened.

Sep 16, 2012 · The story of Lia Lee, told by Anne Fadiman in the 1997 book “The Spirit Catches You and You Fall Down,” helped change American views of cross-cultural medical treatment. Miss died...

When Lia Lee Entered the American medical system, diagnosed as an epileptic, her story became a tragic case history of cultural miscommunication. Parents and doctors both wanted the best for Lia, but their ideas about the causes of her illness and …