Systematic Review of Patient-Reported Outcome Measures in ... - PubMed
A comprehensive systematic review based on the COSMIN guidelines was conducted to identify studies using PROMs (including those for QOL and symptom burden) in acute and chronic GVHD (cGVHD) patients.
Joint and fascia manifestations in chronic graft-versus-host disease ...
In a prospective, multicenter, longitudinal, observational cohort of patients with chronic GVHD (n=567), we evaluated 3 scales proposed for assessing joint status: National Institutes of Health (NIH) joint/fascia scale, Hopkins fascia scale and the Photographic Range of …
Systematic Review of Patient-Reported Outcome Measures in …
May 1, 2020 · Three PROMs had evidence to support reliability, responsiveness, and validity for chronic GVHD. Few PROMs had psychometric validation for acute GVHD. Future research should include comprehensive psychometric testing of PROMs for GVHD.
EBMT−NIH−CIBMTR Task Force position statement on standardized ...
Acute GvHD refers to the appearance of an allogeneic inflammatory response in exclusively three organs: the skin (inflammatory maculopapular erythematous skin rash), the liver...
MEASURING THERAPEUTIC RESPONSE IN CHRONIC GRAFT …
Dec 15, 2000 · To accelerate development and approval of novel therapeutic agents in chronic GVHD, quantitative research tools are needed to measure short-term responses to treatment and to predict long-term clinical benefit.
National Institutes of Health Consensus Development Project on …
The 2005 National Institutes of Health (NIH) Consensus Conference proposed new criteria for diagnosing and scoring the severity of chronic GVHD. The 2014 NIH consensus maintains the framework of the prior consensus with further refinement based on ...
Summary of Included PROMs Used in GVHD - ResearchGate
In a systematic review of the literature, including studies of adults and children with TTP, we assessed the validity evidence for use of PROMs in clinical research and clinical practice,...
Recommended Tools for Joint Chronic Graft-Versus-Host Disease: Results ...
Nov 16, 2012 · To determine the optimal tool for assessing joint GVHD, we evaluated 2 NIH recommended joint tools (Table), a photographic range of motion (P-ROM) scale, and 7 other NIH recommended tools (Lee symptom scale, 10-point overall symptoms, FACT-G, SF36, Human Activities Profile, walk test and grip test).
An in-depth qualitative examination of individuals with chronic cutaneous GVHD via qualitative interviews using a semi-structured interview design with a free-listing portion to assess health-related quality of life domains and to create items for a PROM.
Summary of Measurement Data for Generic PROMs in GVHD
Graft-versus-host disease (GvHD) is a frequent, and often life-threatening, complication after an allogeneic, hematopoietic stem cell transplantation (allo-SCT).