US health agencies postpone rare diseases event in an unusual move
A two-day meeting aimed at raising awareness among policymakers and public about rare diseases scheduled for the end of the ...
cidrap.umn3h
'Exceptionally rare' mutation on H5N1 virus in Canada tied to antiviral drug resistance
In a research letter published this week in Emerging Microbes & Infections, researchers at the Canada Food Inspection Agency ...
‘That could be your family member’: Rare diseases affect 30 million Americans
The National Organization for Rare Disorders is a coalition of patient advocacy groups and the first national nonprofit that ...
JD Supra6h
Navigating Key Challenges in M&A Deals in the Rare Disease Sector
In honor of Rare Disease Day on February 28, 2025, we will publish a series of posts throughout the month on As Prescribed ...
Scientists Describe Rare Syndrome Following Covid Vaccinations
In a small study, patients with the syndrome were more likely to experience reactivation of Epstein-Barr virus and high ...
News Medical on MSN3d
Rare enterovirus strain in Spain raises alarms over potential outbreaks
Scientists in Spain detected Enterovirus C105 (EV-C105), a rare virus linked to respiratory and possible neurological illness ...
Innovations in research and treatment for rare diseases
More than 30 million people in the United States are affected by rare diseases, many of which are life-threatening conditions ...
pharmaphorum1d
Paediatric rare diseases: Children are not small adults
Around 75% of rare diseases are diagnosed in childhood, with most before the age of two. With 30% of rare disease patients ...
US health agencies postpone rare diseases event
A two-day meeting aimed at raising awareness among policymakers and the public about rare diseases scheduled for the end of ...