‘That could be your family member’: Rare diseases affect 30 million Americans
The National Organization for Rare Disorders is a coalition of patient advocacy groups and the first national nonprofit that ...
Nature4h
Newfound bat virus that uses notorious receptor poses ‘spillover’ risk
The virus is related to the pathogen that causes Middle East respiratory syndrome and capitalizes on the same ‘entry receptor ...
News Medical on MSN1d
Rare enterovirus strain in Spain raises alarms over potential outbreaks
Scientists in Spain detected Enterovirus C105 (EV-C105), a rare virus linked to respiratory and possible neurological illness ...
FOX 5 New York on MSN7h
Long Island family raises awareness for rare disease: What is FOXG1 syndrome?
Millions of Americans suffer from a rare disease that can make finding cures and treatments difficult. Here's how a family on Long Island is raising awareness: ...
Innovations in research and treatment for rare diseases
More than 30 million people in the United States are affected by rare diseases, many of which are life-threatening conditions without available treatments. On Thursday, Feb. 27, join Post Live on ...
Johns Hopkins Medicine1d
For Patients with Rare Diseases, Genetic Counselors Can Save Lives
As key members of the Johns Hopkins Department of Genetic Medicine, genetic counselors help patients with rare diseases ...
Acsh.org7d
Rare Diseases Are Neglected. The FDA Needs A Dedicated 'Center of Excellence for Rare Diseases'.
The FDA has made some modest efforts, but it needs an internal organization that understands and would be an aggressive ...
Activating complex regions of the genome to treat rare diseases: Researchers identify a a master epigenetic switch
Biomedical engineers at Duke University have demonstrated a promising new approach that could be used to treat a rare and ...