Because NF1 is an unpredictable disorder, it varies widely in severity – even among two people in the same family. Some people with NF1 may be completely unaware that they are affected, experiencing ...

My 10-week-old infant girl had been born with a rare condition called Neurofibromatosis Type 1 (NF1). NF1 causes tumors to grow on nerves throughout the body and can lead to blindness, learning ...

Neurofibromatosis is a group of rare genetic disorders that cause benign tumors to form on nerve tissue. Tumors in this disorder are usually noncancerous (benign), but can sometimes become ...

The endowed chair will focus specifically on research into neurofibromatosis type 1 (NF1) in children and adults and other neurological conditions. NF1 is a genetic disease that creates light ...

It’s important to know that an accurate diagnosis of NF1 can only be made by a physician with expertise in the diagnosis and treatment of neurofibromatosis. Because people with NF1 often have multiple ...