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Four years later, Frances was diagnosed with a rare genetic condition called DHDDS, which is a neurodegenerative disease. According to Cure DHDDS, there are only 70 known cases worldwide.
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Portugal. The Man highlight rare disease month as bandmember’s daughter battles genetic diseaseThe daughter of bandmembers John and Zoe Gourley, Frances was diagnosed as a child with a one-in-a-billion genetic disease called DHDDS. Her diagnosis – like more than 90% of rare diseases ...
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